City MP Mark Lancaster has pressed for a review of screening for Spinal Muscular Atrophy (SMA) in Parliament today on behalf of his 3 year old Constituent Maya Czerminska of Olney.
The call comes as 24 amateur cyclists have travelled from Le Mans to Olney to raise £40,000 for local girl Maya. After 7 days and 7 nights, the team have cycled 550 miles to raise essential funds for Maya Czerminska who suffers from the genetic disorder Spinal Muscular Atrophy, the number one killer of infants and young children, it prevents messages from the brain travelling down the spinal cord which leads to the muscles wasting away.
Speaking in Parliament Mark said:
'Can we have a debate on Spinal Muscular Atrophy, the number one genetic killer of infants and young children, I'm sure that the leader of the house with join with me in congratulating 24 of my constituents who are raising funds for my 3year old constituent Maya Czerminska by cycling from Le Mans to Olney to buy the specialist equipment she so desperately needs, but can I simply ask if the Government will redouble its efforts in tackling this crippling disease?'
Responding the Leader of the House Sir Gorge Young confirmed that the UK National Screening Committee would undertake a review of the screening policy for SMA and invited Mr Lancaster and his constituents to contribute to the review.
The cycle team returned on Saturday 30th June, in time for the Cherry Fair.
For more information on the challenge please visit; www.b2bcycle.co.uk